Carshalton and Wallington MP Tom Brake has signed the Motor Neurone Disease (MND) Association’s Charter in recognition of the rights and priorities of people living with MND and their carers.
MND kills five people every day, with half of people dying within 14 months of diagnosis. This terminal disease can affect any adult at any age. There is no known cure.
Unfortunately, this condition is still little understood and this contributes to many people with MND not receiving the care and support they need. The MND Charter has been launched with the aim to change this.
The five-point charter sets out what good care looks like for people with MND and their carers and is designed to raise awareness and understanding of this brutal disease.
Mr Brake said “I am delighted to sign up to the MND Charter. I believe everyone with this devastating disease should be supported to maximise their quality of life and die with dignity.”
Liam Dwyer, a person living with MND and fronting this year’s MND awareness campaign said “Many people with MND die without having the right care, not having a suitable wheelchair, not having the support to communicate. When living with MND, one month waiting for an assessment or a piece of equipment is like a year in most people’s lives, especially as half of the people with MND, die with 14 months of diagnosis.”
The MND Charter, which has already received endorsements from leading medical institutions aims to ensure people with MND and their carers have access to timely and appropriate information, care and services to maximise quality of life and preserve dignity.
To sign the MND Association’s Charter visit www.mndassociation.org