Tom Brake MP joined national charity the Cystic Fibrosis Trust to celebrate the work of the paediatric Cystic Fibrosis Unit, headed up by Dr Ritu Handa.
Mr Brake heard about major developments in the last few years that have had a positive impact on the lives of people living locally with cystic fibrosis as well as about the challenges of providing specialised care.
Tom said: “There is increasing pressure on paediatric services as more children are diagnosed with cystic fibrosis. We must continue to provide the right support for hospitals like Queen Mary’s Children’s Hospital at St Helier, so they can continue to carry out their incredible work.”
Emma Lake from the Cystic Fibrosis Trust said: “We are delighted that Tom Brake MP has joined us at the paediatric Cystic Fibrosis Unit today to see how it has improved over the years. Due to the introduction of new born screening and the resultant increase in children diagnosed with cystic fibrosis, there has been a significant need to further develop the paediatric services across the UK to care for them.
People with cystic fibrosis need to be cared for by a multidisciplinary team. The complexity of the disease means that patients at Queen Mary’s can access specialist doctors, nurses, physiotherapists, psychologists, dieticians and pharmacists who are important in helping someone with cystic fibrosis to manage symptoms and maintain their health.
In recent years the number of children with cystic fibrosis is consistently increasing. Adequate facilities are particularly crucial due to the risk of potentially fatal infections being passed from one patient to another.
For this reason, all inpatient and outpatient activities are routinely segregated. The majority of people with cystic fibrosis are advised to carry this segregation into their daily lives, avoiding all contact with other people with the same disease.
To find further information or support on cystic fibrosis please visit www.cysticfibrosis.org.uk.